“The brain is wider than the sky.” Emily Dickinson
Late Friday night, I was informed that Vernon had been sent to the ER again because he’d pulled his G-Tube out. It was no big deal, they fixed him up and sent him home. I didn’t need to be there. But I’m paying attention: the last couple of times he’s gone to the ER, there has been a depression link, so I am hoping that what is now being prescribed is helping rather than hindering. The doctor has slightly bumped up the dose for now, but he also mentioned that some antidepressants can increase anxiety so we might be seeing some of that.
I’m finding if I can coax him into a tender place, if we focus on big abstract things like love and romance or his dedication to his family, he is more likely to connect intellectually. I’ve had some marvelous conversations with him lately. Sometimes I’ve managed to write down on my phone’s memo-app what he says, but if I miss it the first time, he doesn’t like to repeat himself. When I can connect with him on this level, I recognize more of the Vernon I used to know: a philosopher of sorts, very sharp and intuitive in his ability to read people. He’s even given me some advice lately that I’ve decided to respect. That’s it: I recognize the part of him I miss most.
It does come in waves, but it’s remarkable to be access him in these conversations. Each conversation is totally different, mind you—some are still very short and random. I’m also learning that in finding this honest and connected space with him, I must leave room to transition him back out of it so he doesn’t become volatile when I have to leave. Twice this week, I’ve been late for school pick-up because he became violently upset when I stood to go. This mostly seems to happen if we’ve connected from the heart. I must be more mindful of the time. It’s like he’s been warmed up in a nice bath, the put out alone in the wind. It’s heartbreaking for both of us.
Vernon is bringing up ‘home’ again. He wants to be with us on the couch, he says. He wants to be with his family. The other day, he told me he had a dream of when we were first were together, that I had left him and he was desperately hoping it wouldn’t end. Later, he kept asking what will he do when I send him back to England alone. Who will take care of him? I assured him I wasn’t leaving him, but I was thankful to know exactly what he is experiencing. I think its loneliness and the fear of separation. Incidentally, separation anxiety was something Vernon had struggled with in his life.
So I wonder how much of that is a new thing or an old thing? But it seems positive that he is expressing his psychological thought. Just as his family are learning to stay in the strange frenetic space between grief and joy, disappointment and hope, he may be learning it too. It’s a sign to me that his still in there. It’s amazing what stays a part of a person when other things leave.
But mostly I see love. That is always there. It’s been remarkable to think about it. Vernon has been teaching me remember it in myself and look for it in others. It’s what every human being has in common: every single person has loved ones. Every single person loves and is loved. It doesn’t leave our bodies until we’re gone. We should spend more time accessing that while we are here.
(PS…That doesn’t make it easy. But it makes it better.)
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How profound this all is, and what a picture!
Thank you Anne. My talented sister in law took photos of us a few years ago. I’m so happy she did.
So beautiful, love you all.
There’s also an audio recording app, it might be helpful to use to record conversations in the moment.
you know I tried to bring out my phone memo recorder but I still missed the good stuff. I wonder if there is an app that is easier to use…
Allison,
You are doing wonderful with Vernon and I hope he realizes all it takes to be there and still take care of Maki and Justine. God bless you and all the others that take care of Vernon.
How is Joe doing now? He seemed like he really liked rooming with Vern.
Hugs,
Becky
Just love this photograph your sister in law took ..she has such talent, so pleased she took the set of photos of you all ..such happy memories to keep … so sorry to hear he is experiencing the feelings of being away from you all so much ..we know how badly he feels when he is away from you and the children.. that Christmas he spent here in England was so worrying ..little did we know what was to come later, that his whole world would be turned upside down as it is now !! i guess we must love each other while we can ..hold on tight, we never know what is round the corner for any of us
xx love to you all xx big hugs , say hi to my brother from me ..miss him so much ..and I know he will never spend christmas here at my house again..but we have memories of so many christmas`s together xx
that was a hard Christmas…but he got through it! Hopefully, he’ll get through this round too! Everyone has neuroses…but its a clue there is something recognizable in him even if it isn’t his favorite part of himself! So I think its good! Not easy, but good. Right?
not easy , yes but it is good .. he wants to be with you all ..there is some Vern under that head injury..little by little, day by day..the good days and bad .. maybe his brain is healing itself, but it is hard watch for all of us who knew the “old” Vern.. struggling to become a new Vern xx
love to you all ,always xx
Beautifully put, Vanessa. Like a butterfly, perhaps?
xxx
Beautiful post, you live on the ever so fine line of love, hope & despair, closely mingled together every day.
I was thinking that also, to record your conversations with Vernon.